THE BURDEN OF LIVING with Mom finally drove Jill
to move out. Alone in her house, Mom began calling her children and
complaining about terrible loneliness. If she got an answering machine,
she sometimes argued with it until she broke down and whimpered.
One day, Mom turned left into oncoming traffic and totaled
her car. Luckily, she didn't hurt herself or anyone else.
We all agreed Mom shouldn't drive any more, but we still
failed to grasp the severity of her illness. We couldn't accept that
she was incapable of even ordinary tasks. There was a certain naivete
about the disease that dulled our decision-making. With the alternatives
unthinkable, we allowed her to continue living alone. Her neighbors and Jill
helped her get along.
In April 1995, Jill enrolled Mom in an adult day care
program. It was long overdue. In day care she ate at least one big nutritious
meal daily. She made friends and enjoyed being there.
But the downward spiral accelerated.
Jill began noticing that Mom wore the same clothes day
after day. Mom layered several pairs of underwear, pants and shirts.
Jill had to coach her through showers. Standing on the toilet, she'd
gently remind Mom to use soap. Soon, even that wasn't enough.
In a poignant role reversal, Jill began to bathe her
mother.
It's horrifying to know that your parent's brain is
dying. You either run, avoiding the issue, or you fear. Fear for her,
for yourself, for your children. You wonder if a time bomb is ticking
inside your own head.